Mental Health Misunderstood. Again.

According to yesterday’s Globe and Mail, a report from the Vancouver Police Department identifies the deinstitutionalization of the mentally ill as a major problem for police, who have become de facto mental health workers.

“We certainly have identified individuals that we wonder whether it would be healthier – both for themselves and the community – if they were in institutional care,” Vancouver Police Department Inspector Scott Thompson is quoted as saying at a press conference. “The difficulty,” he added, “is that [that] is a medical question. That’s not within the realm of policing.”

Ah, but there’s the rub. It’s not a medical question or medical issue or even a medical decision. It’s a political and economic and sociocultural one.

When the decision was made to – for all intents and purposes – shut down the single major institution this province had for the mentally ill, Riverview, it had nothing to do with the doctors and nurses and social workers; it was a decision made at the Ministry of Health and provincial and federal level. It had to do with the general tenor of the times, notions of autonomy and individual rights  – not to mention a way to save cold, hard cash.

Riverview, once upon a time

To some extent it was in reaction to the authoritarian, pseudo eugenics-type of position taken in earlier decades where the mentally ill were forcibly sterilized, forced to undergo horrible procedures (like frontal lobotomies – driven by the enthusiasm of a single nutty doctor incidentally) and unethical experiments on prisoners and others considered somehow lesser human than the rest of us.

Now the chickens have come home to roost. The downtown east side is a morass of misery and it is the police and the justice system who increasingly have to deal with people who are incapable of making rational choices for themselves. People who live next door to drug addicts and pushers and pimps.

Yes, it is a disgrace and yes, many of the people are sick and would do far better in the wooded confines of Riverview Hospital. But we’re closing Riverview (the scuttlebutt is that the land is worth a mint and that plays a major role as well)

Many years ago I wrote a document for and on Riverview; I spent a few days wandering the grounds and halls, talking to psych nurses and doctors and patients and all kinds of people. I watched as mentally ill individuals happily wandered through the garden and attended art therapy and crafts workshops. If they had a bad episode there were medical professionals on hand to help.

But.

As a society we decided a long time ago that we couldn’t afford it, that it wasn’t a viable alternative, that it wasn’t the way to do things.

Now the police are unhappy about how it’s all unfolded and most of us don’t like it much either. But it’s not a medical decision. Or even a personal one – talk to the families of schizophrenics or people who feel fine on meds and decide they don’t need them any more, become psychotic and head for the hills. Even if the hills are only in their mind.

Mental illness is complex and misunderstood – but it’s not medicine that’s let us down. It’s ourselves.

9/11 revisited, again and again

Many years ago when I was young, idealistic and – not to put too fine a point on it – an idiot, I truly believed that ideas, beliefs (like democracy) could drive action, states, life. I thought that if you had the right attitude then, by golly, the right institutions and governments would follow. As I said, I was an idiot. Most 17-year-olds are.

I now know that it is lives and who we are, how we are, how we live that drives the systems we adhere to. What does that mean? Well, it means that the Bush Doctrine of heading into Iraq post 9-11 to bring democracy into the region – democracy deprived as those poor Iraqis were – then all would fall into place, like a jigsaw puzzle opening up into its full splendour of a sunset over the Rockies.

But it’s not like that.

People’s lives, whether they have enough to eat, a place to live; whether their children can go to school, safely, and come home after without being blown up; it is having decent work under reasonable conditions, living in a place where you can make a life for yourself: it is these that then give rise to political and moral beliefs.

Years ago a psychologist by the name of Kohler (I think that was his name, my lamentable memory) spoke of the slow process through which true moral understanding develops. Another psychologist, Maslowe, spoke of the hierarchy of needs and how it is only after the fundamentals are satisfied is one able to concern oneself with abstract concepts like ethical societies or an ecological metaphor for life. One can only become a person with genuine global, ecological concerns required living in a world where one’s other more basic needs like food and shelter are met.

But we don’t talk much of development or developmental processes these days. Early education is under attack (no matter how much the school day is extended) and our reverence is focused on the gene and its so-called blueprint. Well, if you believe that it’s all there, ready to go, in your genes then why the hell would you even think about development, learning, the ways in which an individual evolves into that wonderful Jewish notion of a mensch?

To care about things larger than oneself one needs to have the basics and the knowledge that more is out there if one applies oneself. This is what the Arab Spring is about and this is what the guardians of terror and nitpickers at airports do not get. As long as entire regions of the globe only see the good life in movies downloaded from the internet or from satellite television – never in their own lives – there will be terrorism and people willing to die because they have nothing to lose.

That was the real lesson of 9/11. Or ought to have been.

The clinical arts made clear

For years I have been whinging on about the overuse of medical technologies, in my writing, teaching, speaking (occasionally stooping so low as to corner a hapless victim at some dull cocktail party who’s made the mistake of innocently asking me what I do/am working on). And finally, the Archives of Internal Medicine has backed me up with a new, elegantly designed study from a group of physicians in Israel.

(Oh North America, why do you ignore the nuanced questions? Why is it that American and Canadian researchers confine themselves to reductionist questions like Pax2-dependent transcription activation and other such unpronounceable minutae, leaving the critique and analysis to the Israelis and Finns and Norwegians and Dutch and so on?)

Then again, it is not just researchers but us on this large continent, we who believe in high tech and guidelines, rules and benchmarks. We has seen the enemy and he is us, to coin a phrase. Our cultural template, our social world, our beliefs and values predispose us to believing in the power or science and technology; we love our smartphones so medical technologies – those lovely acronyms like MRI, CT and PET – must also be the royal road to answers. So we push push the doctor to send us for “tests” so we too can receive our god-given right to radiation.

What we inevitably forget (or just don’t know) is that what medical technologies measure are, at best, only pale imitations at best of the complexities of disease and illness.

When I remind students – seniors, undergraduates, their ages don’t matter – that “an MRI or CT scan can’t tell if that lump is benign; it’s a person, a human being who makes that determination” I can see that shock in their faces.  Because the seem to have forgotten that it is a fallible human being, prone to errors and fatigue and over- and lack of confidence who figures out the test, not the computer/technology.  And people can miss things, over- or under-report; people can exaggerate a problem because they’ve been sued or are in a hurry to get home and get to their child’s soccer game.  (Came as a shock to you too, didn’t it? You kind of thought technology trumped clinical judgement as well.)

Back to the Israeli study done by Liza Paley, MD along with physician colleagues Zornitzki, Cohen, Fredman, Kozak, and Schattner. They examined newly admitted patients to the emerg for 53 days, checking to see if the various tests and scans and so on ultimately aided in the final diagnosis. Sure enough, and wonderfully confirming my own cranky comments, they found that “more than 80% of newly admitted internal medicine patients could be correctly diagnosed on admission and that basic clinical skills remain a powerful tool”. In other words, with only a handful of old, cheap lab tests (which were found to be “crucial”) plus a detailed history and decent clinical skills, you could narrow down the diagnosis and figure out how to treat the patient.

In fact, up to 90 percent of correct diagnoses were the result of history, exam plus some basic blood work (hematology and chemistry, urinalysis, EEG chest x-ray – which, I would remind you, contains anywhere from a tenth to 1/400th of the radiation of a CT scan.

These are not the tests we associate with medical high tech though. These are old tech, based on boring old 20th century research. No genetic tests, no cool monitors or flashy gadgets.

“Our results do not mean that sophisticated studies need not be used after admission, but they do suggest that their choice should be guided by the clinical data on presentation,” wrote the authors  in the Archives.

Of course our complicity in all this, particularly in community medicine, was a not a part of this study; neither was our belief, our faith in the power of the technology; superhuman, infinitely superior to the biological brain and, of course, infallible. Stemming from our belief that disease somehow has an independent reality – that it is the “other”, evinced by our metaphors (“killing” the cancer, “fighting the disease) and attitudes – that is observable through “scientific” means, ergo technology.

In fact disease and illness are nothing of the sort. A manifestation of human frailty, highly individual and affected by everything about us and around us: who we are, who we were, our personal and family history; our lives and fears; our environment and social biases – all the many stresses and strains we’ve been exposed to, from what we ingested to what we’ve invested. Ultimately, what matters isn’t that label, that diagnosis, however much it might provide us with comfort, but the care we receive.

And that, boys and girls, is the art of medicine without which the science hasn’t got a chance.

Riotous Living

Coming at things a bit late – no surprise there, particularly in the summer when I teach and run around like a crazy person – so it’s taken me a bit of time to get to that Stanley Cup riot thing.

Fahrenheit 451?

Like a lot of people I watched it evolve with fascinated horror on CBC television; struck by the  destruction and sheer, wanton glee in those fires and general mayhem.  The restraint shown by the VPD also impressed me – and since I have been critical of heavy police presence in the past this did strike me as … civilized.  A camera crew caught one particular young man in mid rant as he poked and yelled at a couple of cops who calmly ignored him. Poke the bear with a sharp stick why don’t you, I thought. Later, quite a bit later actually, I saw him being arrested. Frankly, I’d not have displayed such forbearance with a drunk kid having a tantrum if I was holding a baton.

Restraint aside, one did have to wonder why nobody seemed to even consider that this was a a problem in the making, A Situation, what with the number of people downtown, the amount of alcohol consumed and the sheer intensity with which this city greeted that Stanley Cup final. Feelings ran so high that last week you could cut the air with a knife, even in stores just going about your business, as I was. And it didn’t occur to anyone that trapping a whole bunch of people in a five block radius might be a bad idea? Just asking.

Then the immediate analysis that of course it was really a vile bunch of outsiders, no doubt lurking in the wings waiting for their chance to wreak havoc. Like movie extras, just waiting for their five minutes of fame (and a chance to wear those balaclavas).

Ah yes, the outsider theory. Which, as anyone who’s ever read an Agatha Christie knows, is never the case. For in the immortal words of whatshisname, we have met the enemy, sir, and he is us.

But we are fond of that notion of the outsider and hate to give it up, be it in terms of disease or terrorism or anything else. We don’t like thinking that our friends, neighbours, colleagues and those nice people living around the corner have it in them to behave so badly. Most importantly, we don’t like to believe that we have it in ourselves.

Yet that’s why we have police and judges and juries and international courts. Individuals, once tossed into a group, lose all decorum and – for the most part – are reduced to their lowest common denominator. And that all too often is all that is loutish, cruel, and bloody inelegant..

As with disease we prefer to think of the problem as somehow external to us, not our own cells turning rogue, with cancer, or our own immune system becoming destructive as in rheumatoid arthritis or lupus. Far better to believe in the metaphorical infectious disease, the tuberculosis bacterium, the smallpox virus, the malaria parasite transmitted by mosquito. Even swine or bird flu. Identifiable and on the outside, attacking and therefore something we can attack, mobilize forces against, fight – be it through an analysis of its genome or killing it with chemotherapy.

Comforting thought that – that we can somehow protect ourselves if we just put our minds to it. The problem is that it’s not the way even a microbial disease behaves, given that a virus or bacterium or parasite is always, in epidemiological terms, necessary but not sufficient. The immuno-competence of the host, his or her life, diet, life circumstances and a host of other factors go into determining whether or not we get ill.

Think on that the next time you try to “fight off “ a cold or hear someone say they won’t let the cancer win. There are no winners or losers in physiology, any more than there were any winners in that Vancouver riot. We all pay for the broken windows and stolen property and we all have to deal with the moral, aesthetic and social consequences.

Maybe if we recognized that to begin with we’d be better equipped to face it in the first place. And wouldn’t have to run around setting fires and losing our heads.

Yet another election – is it still 2008?

No self-respecting curmudgeon would consider the current (federal) election a worthy topic of conversation (the superficial nonsense on health care alone is enough to put one to sleep), nevertheless given the ridiculous fact that it is even happening seems to require some kind of reaction.

Mine is mostly boredom. Well, I do confess a that those appalling conservative attack ads do vex me – ah, Ignatieff didn’t come back for me? Why would he have to? Was I lost? (Perhaps there is some subliminal religious theme here that I’m missing: “I once was lost and now I’m found, etc.” )

Four old white men, desperately trying to seem relevant – tweeting, eating hot dogs, hanging out at Tim’s drinking some weird concoction called a double-double (and you call yourselves coffee drinkers, pah) – wandering around the country in a repeat of 2008. Women my age apoplectic at the sexism and waste of money; young people completely disengaged and why shouldn’t they be when the one time a bunch of them try to get into a Harper rally they are turned away, and older people the only ones paying attention lest anyone go anywhere near their various entitlements. Touch my senior discount sonny and I’ll bean you with my walker.

Sorry. That was uncalled for. Particularly from a person of my advancing years. As, incidentally, we all are.

So, in keeping with the spirit of this corner of the cybersphere, I will focus on one small aspect of the discussion, one that I know a thing or three about, health care. Notably that dastardly phrase in the Canada Health Act, namely that all “medically necessary” services will be provided, ad infinitum and ad nauseum.  For aye, there’s the rub.

What, in this age of in vitro fertilization and knee replacements, full body MRI’s to “rule out” any serious hidden condition and various and sundry (highly expensive) drugs that will prolong life for a few weeks, is actually medically necessary? According to whom? CNN? The magazine you’re reading? The specialist? Your Aunt Sadie?

Things were a lot easier 50-odd years ago. Your grandmother knew when she was sick and needed to go to hospital (well, most of the time, if she didn’t decide she was too busy and couldn’t afford the time). Nobody was breathing down her neck insisting she had all kinds of risk factors that needed treating or pointing out that type 2 diabetes was the “silent killer” and surely someone her age needed to be on a biphosphonate for her bones. Oh, after a bone scan of course. Ah, the good old days.

Today, on average, women live past 80 and men about 78. In all likelihood anyone that age has a few things “wrong”, the question really is whether or not all of these need intervention and whether these treatments and drugs and so on end up often doing more harm than good.

What we need is a genuine, difficult discussion on what “medically necessary” means. For everyone, not just my Uncle Joe or me down the road (which of course must only be the best). Hell, why don’t we go all out and have a discussion about science policy as well. Rather than just the blather – science good, health care, good, oog oog. (For a more nuanced and informed discussion on science policy in Canada, visit my friend frogheart’s blog here.  ( Or you can listen to her being interviewed on Peer Review radio.)

In terms of health care, which everybody wants in on (versus science policy which makes most people run shrieking – forgetting that without policy we remain the commodities market we always were and that, boys and girls, is finite – those forests and minerals eventually will give out – the basics are as follows: Any national health care program has to navigate carefully between being all things to all people (and going bankrupt) and being most things to (almost) all people (there will always be people who end up getting better care than others, that’s life) but then we have to de-list somethings. We can’t do everything all the time. So that means we all have to give up a few things, like getting that MRI right this instant.  In any event, most of the time later on is good enough.

Take a painful knee.  Whether you’re a weekend warrior or a professional athlete, the reality is that joints take time. With or without that MRI your knee needs rest, ice, elevation, an anti-inflammatory and tincture of time. You may never need the MRI, the knee will probably get better. If it doesn’t, well, eventually you’ll need surgery. Again, MRI optional. But our belief in technology is so extreme that we transpose screening technologies with treatments. Simply knowing what something looks like isn’t a solution. But we always want “more”, like that Dickens kid.  And if we don’t get surgery next week? We end up complaining to the media that our health care stinks and all is lost. Like that woman, a gazillion pounds overweight, who whinged to the Globe and Mail a few years because she didn’t make it to the top of the surgical list. Or the alcoholic who’s peeved that his new liver can’t be had on demand.

My prejudices and curmudgeonly asides aside, this is a discussion Canadians need to care about and engage in. What constitutes medically necessary care? It’s not enough to think health care is just the greatest thing since sliced bread. We have to define what it is, what it means – and we all have to be prepared to give up a few things for the good of the all. That’s what ‘public” means.

But that’s the conversation nobody wants to have, which is why this election is really about individual (male) ego. And that’s boring.